Including all voices in international data-sharing governance

Developing Governance for Federated Community-based EHR Data Sharing

Bi-directional translational pathways between scientific discoveries and primary care are crucial for improving individual patient care and population health. The Data QUEST pilot project is a program supporting data sharing amongst community based primary care practices and is built on a technical infrastructure to share electronic health record data. We developed a set of governance requireme...

Social Creativity: Making All Voices Heard

The power of the unaided individual mind is highly overrated. Much human creativity is social, arising from activities that take place in a social context in which interaction with other people and the artifacts that embody collective knowledge are essential contributors. Social creativity is not a luxury but a necessity to address the problems faced by societies in the 21 century. Our research...

UK Parliament calls for sharing of all clinical trial data.

Sharing all types of clinical data and harmonizing journal standards.

Despite recent efforts to enforce policies requiring the sharing of data underlying clinical findings, current policies of biomedical journals remain largely heterogeneous. As this heterogeneity does not optimally serve the cause of data sharing, a first step towards better harmonization would be the requirement of a data sharing statement for all clinical studies and not simply for randomized ...

Regulatory interdependence and international governance

The objective of this paper is threefold: First is to produce a broad framework of the ways that state regulatory policies are interdependent. Second is to examine the factors that determine the nature of that interdependence. Third is to discuss the governance implications of different types of regulatory interdependencies. This analysis is applied to the spread of a new international sh inspe...